
Mapping the Space of Dementia
Mapping the Space of Dementia brings together scientists, clinicians, care workers, care partners, people living with dementia and an artist, to explore how we position and locate ourselves in our world. Artist Mick O’Kelly uses brain imaging technology to capture cognitive difference, which is then mapped onto stained glass and installed in the home environments of participants.
The project was initiated by O’Kelly in 2022 following a Research Atlantic Fellowship with the Global Brain Health Institute (GBHI) at the University of California San Francisco.
Participants
The initial impulse for Mapping the Space of Dementia occurred while doing an Atlantic Fellowship with the Global Brain Health Institute at the University of California San Francisco 2021-22.
I worked with Dr Jon Kleen, Neurologist at UCSF Health, and Dr Serggio Lanata, Neurologist at the Memory and Aging Centre UCSF, and their patients. To make the stained glass, I collaborated with John Lennox Glass Studio in San Francisco.
Funding to develop a pilot project in Ireland offered an opportunity to explore forms of collaboration between art and neuroscience where the patient participation is substantively central to the process.
Building on the rationale and framework from the San Francisco pilot, I adopted this structure to work with Dr Siobhan Hutchinson, Consultant Neurologist, Dr Damien Ferguson and their clinical team and patients at St James’s Hospital. We are engaging with five patients in Dublin, Wexford, Kildare and Mayo.
I am working with Michelle O’Donnell of Glass Hammer Studio in Offaly to make the stained glass. Michelle has a sophisticated glass studio and vast experience in sculptural glassmaking and architectural installed works.
Aims
Mapping the Space of Dementia is about the indeterminate relationship between humans and space. I propose that space is something we produce, rather than a void we fill with artefacts, objects, and architecture. Space is physical, ephemeral, fluid and linguistic. It is within our gift to produce spaces that stimulate and energise us.
We are all complex and form identities that are marked out by difference and express ourselves with different capacities and abilities. However, some are caught in a milieu where language is not always easily shared and communicated. They may live in a non-verbal wordless zone beyond language. In the most extreme, there is an erosion of self, a cathartic dissolution of language and mind, and emergence of uncertainty for all who share this new life.
In building a collaborative space between Art and Science, this project aims to create innovative ways to participate in the lives of people with dementia, and to produce transformative spaces that stimulate the senses for one’s milieu and wellbeing.
Methods
My methodology of practice firstly acknowledges that art and science are two discrete systems of producing knowledge. Neuroscience deals with the anatomy, function, and organic disorders of the nervous system using a sundry of epistemic methods and technologies to frame a position on a person’s cognitive reserve, quantified with rational objective rigour – machine learning.
Art knowledge operates in a more fluid space of nonverbal and non-linguistic means of representing what we cannot see, hear, or say. Neurological assessment determines a patient’s cognitive reserve, neurodegenerative conditions of cognition, spatiotemporal perception, executive function, conceptual thinking and language competency. The conversation frequently centres on erosion, loss of memory, executive function that will have profound life changing consequences to one’s sense of self.
My focus is on how an art-science collaboration can change the contexts of the patient’s living environment. Using the Electroencephalogram (EEG) scans of participants – an algorithmic brain imaging system to represent a moment in time is transferred to colour map spectrogram components – these spectral maps become the template to make stained glass.
The process uses glass frit – small crystal fragments of glass powder cupped in one’s hands and poured on to clear float glass – to follow the spectrogram map. This is then fired in the kiln. Participants choose where they would like to have the stained glass window installed in their home. The cosmic rays of the sun illuminate the living environment of participants, creating a transformative space that stimulates the senses, enhancing wellbeing.
Artistic Outputs
This project involves an assemblage of parts that are embedded in the methodology of exploring how art and science speak to each other. To understand each rationale and rigour is like lines of flight where ideas emerge out of the cracks and fissures in conversation. The journey is more an exploration than explanation of what we cannot hear, speak or say.
The assemblage of science data (EEG) to stained glass is a kind of material output – the art object. But the object of art is a more exciting proposition.
The stained glass window is placed within an environment in which the owner often inhabits a space of fleeting thoughts, ideas that will never be experienced or be seen the same twice. As a material, light not only reveals, but is a revelation in itself. It has the potential to influence our circadian rhythm, blood pressure, emotions, digestion and feelings of wellbeing. The art encounter will always be experienced anew each day.
Evaluation Methodology
The evaluation is an ongoing process.
The rationale to support the positive effect of ‘light’ as a source of healing and calm in human emotions is found in Light Therapy and Alzheimer’s Disease and Related Dementia: Past, Present and Future (Hanford and Mariana Figuereo, 2013).
Evaluation Outcomes
The feedback from the participants in California is haptic, intuitive and narrative based. They find the atmosphere of the living room to be stimulating, a dynamic colour saturation on sunny days, cool and calming on cloudy and overcast days.
The stained glass windows in Ireland have recently been installed. The initial response has been excitement about the burst of colour, but it is too early to understand the influence they will have on participants. The installation has changed the dynamic of the architecture; participants will need time to sit with this new space, absorb and assess how they feel about its changing context.
The evaluation process is aligned with the Validation of the Arts Observational Scale (ArtsObS) for the evaluation of performing arts activities in health care settings (Fancourt and Poon, 2015).
Caregivers observe whether the art intervention has an impact on participant wellbeing. They keep a narrative diary capturing changes in mood in a month cycle. This is also a helpful tool for clinical assessment.
Ethics
This was a very challenging collaboration, negotiating a medical environment that moves at a glacial pace. In part this is a good thing, protecting a patient’s integrity and personal information.
From an artist perspective, I approached the issue of ethics not as some external decree application but inscribed from within the face-to-face process in how we held a conversation about our common interests. I had several meetings with the patients and their caregivers to discuss the project concept and explain the different stages of development leading to the installation of a stained glass window.
In the US, the proposal received Institutional Review Board (IRB) approval for ROI research. In Ireland, the pilot project was assessed under educational parameters by the Research and Innovation Office at St James’s Hospital. Patients and their carers played an integral part in negotiating the collaboration. This is consistent with the Patient Public Voice (PPV) methodology in research.
Documentation and Dissemination
Documentation of this work can be found on the artist’s website and the Global Brain Health Institute.
The work was presented at the GBHI Annual Conference 2023 and the co-hosted Alzheimer’s Association International Conference (AAIC) Satellite Symposium in Mexico City.
Source: https://www.artsandhealth.ie/case-studies/mapping-the-space-of-dementia/ 2 February, 2026

Wellbeing Is More Than Feeling Good: What Cultural Mediation Can Learn from Psychology
When we speak about wellbeing, we often speak in simplified terms. We ask whether people feel happy, satisfied, positive, or emotionally balanced. These are important questions, but they may not be enough. Carol Ryff’s influential 1989 article challenged exactly this narrow understanding of wellbeing and argued that psychological wellbeing is much broader than happiness or life satisfaction alone .
For those of us working in cultural mediation and adult learning, this insight remains deeply relevant. If culture is to contribute to wellbeing, then its role cannot be limited to entertainment, distraction, or temporary emotional uplift. Cultural experiences can also support meaning, connection, growth, dignity, and agency.
Beyond Happiness




























